Iowa

Upcoming events

Studio E is a multi-week art therapy program open to people with epilepsy in 47 U.S. cities, where participants are given the opportunity to creatively express themselves and their emotions. Living with epilepsy can be challenging and art therapy may be beneficial in working through how the condition impacts an individual's life.
Times and dates for Iowa City Times and dates for Des Moines

Our annual statewide family & caregiver epilepsy education conference!
details and online registration

April 11, 2015 Jordan Creek Mall, West Des Moines (Indoor Walk) Details and Registration Event Flyer
Presented by University of Iowa Departments of Neurology & Neurosurgery

April 25, 2015 City Park, Shelter #6, Iowa City (Walk and 5K) Details and Registration Event Flyer
Presented by University of Iowa Departments of Neurology & Neurosurgery

Trashmore 5K September 12, 2015.
For more information on how to participate please visit Trashmore5k.com

The Epilepsy Foundation's Iowa office has funding available for youth who live in Iowa who have a diagnosis of epilepsy who would like to attend an epilepsy camp. An Iowa Youth Epilepsy Camp Scholarship Application will need to be filled out and approved by the scholarship selection committee.
June 14-20, 2015 CamPossible, New Liberty, IA (New Camp! ) June 14-19, 2015 Camp Oz, Hudson, WI (Near the Twin Cities )
June 4-7, 2015 Camp YouCan, NE (www.CampYouCan.org)
Epilepsy Camp Scholarship Application for Iowa Youth

Epilepsy Education

Customized epilepsy education programs are available for a variety of audiences, including:

Seizure Recognition, First Aid & Safety
Seizure Recognition, First Aid & Treatment Options
Managing Students with Seizures: A Training for School Nurses
Seizure Training for School Personnel
Take Charge of the Storm (Program for Middle School Students)
Take Charge of the Facts (Program for High School Students)
Variety of books to read to Elementary Students
Seizure Training for Childcare Personnel
Seniors and Seizures
Epilepsy and Seizure Response for EMS” personnel training
Epilepsy and Seizure Response for Law Enforcement” personnel training

An annual epilepsy education conference features clinicians and other epilepsy experts, while introducing participants to a wide variety of topics of interest to persons with epilepsy and their families.

Community Council

The community council consists of a group of dedicated, passionate volunteers who support the EFA mission by providing strategic direction, implementing programs and services, leading legislative efforts, and securing long-term financial sustainability.

Iowa Epilepsy Empowerment Groups

Iowa Epilepsy Empowerment Group Meetings
Community-organized meetings for people connected to epilepsy looking to
empower themselves through resources and relationships. Please join us!
Click here for a list of locations and times.

Please call the Epilepsy Foundation Iowa office at 515-238-7660 or call the contact below to ensure dates and times are still current.

Services

Individual & Family Assistance
Support Group Meetings
FREE Seizure Recognition & First Aid Training
Epilepsy Education
Studio E Art Therapy
Iowa Epilepsy Youth Council
Advocacy

Social Media

for resources and upcoming events

EpilepsyFoundationIA@epilepsyiowa

ADVOCACY

Members of the Iowa epilepsy community participate in statewide and national efforts to increase awareness of epilepsy and funding for epilepsy research and services.

Speak Up Speak Out Speak Up, Speak Out is a grassroots advocacy network that connects citizens with their federal elected officials on issues of national importance to the epilepsy community.

Kids Speak Up! is a national conference for youth leaders with epilepsy. It provides 7-16 year olds with a unique opportunity to educate elected officials and staff about seizure disorders.

The Iowa Epilepsy Treatment and Education Task Force:

Initiative is a product of a House File 322, an act relating to the creation of a task force concerning drug product selection relative to antiepileptic drugs for the treatment of epileptic seizures and including effective date provisions.

Executive Summary

Final Report

Iowa Epilepsy Youth Council

The mission of the Iowa Epilepsy Youth Council is to improve the understanding and awareness of seizures among their peers and educators. The purpose of the youth council is to educate, empower and to eliminate social stigma. The youth council is a group of teenagers and young adults who collaborates with the Epilepsy Foundation’s Iowa office to eliminate stigma and uphold the mission of the Epilepsy Foundation through youth oriented projects and programming.

Youth are the future and offer a unique perspective and creativity with new ideas. Youth with epilepsy often feel isolated, nervous and anxious about having a seizure in school in front of their peers. Youth respond more readily to other youth which makes it easier to carry out workshops and trainings. The meetings will offer the opportunity for youth to come and share the difficulties they may feel because of their epilepsy in order to increase their self-esteem and to decrease social stigma.

The youth will attend health fairs in the state, promoting epilepsy education and awareness and participating in some selected seizure trainings for social service groups and schools.

To join the Iowa Epilepsy Youth Council, please contact the Epilepsy Foundation’s Iowa office.